Rare Disease Websites
Brittle Diabetes Foundation
Brittle Diabetes Foundation supports brittle type 1 diabetes, a rare disease listed by the NIH. BDF seeks a cure for brittleness, the rapid shift in BG levels.
The Genetics of Hope
The Genetics of Hope is a new film sharing the journeys of those receiving the groundbreaking treatment for Spinal Muscular Atrophy and what the possibility of a cure means for the world.
OffScrip Media: Raw, unapologetic podcasts about advocacy, heroism, and the audacity of health.
OffScrip Media is a data-driven, science-backed health podcast network company. We give voice to the voiceless. We advocate for change. And we produce raw, unapologetic, no-BS content that talks about real problems that real people have who struggle every day to endure life with dignity.
OffScrip Media: Raw, unapologetic podcasts about advocacy, heroism, and the audacity of health.
OffScrip Media is a data-driven, science-backed health podcast network company. We give voice to the voiceless. We advocate for change. And we produce raw, unapologetic, no-BS content that talks about real problems that real people have who struggle every day to endure life with dignity.
NetsOs - Deutsche Gesellschaft für Osteologie e.V.
Netzwerk seltene Osteopathien. Verbesserung der klinischen Versorgung, der Forschung und der Netzwerkbildung im Bereich seltener Knochenerkrankungen in Deutschland, Österreich und der Schweiz.
Alon's Journey - Home
Alon's Journey is a semi-professional blog about a child with a mitochondrial disease due to a mutation in the GFER gene and our fight for his life and well being .
Berbagai Kumpulan Informasi yang Bermanfaat
Situs yang berisikan informasi berbagai kategori yang bermanfaat
CHAMP1 Gene Patient Support | Stirling | Connecting Families
We are a Patient Support Group. Connecting families with the CHAMP1 gene mutation, Stirling