Rare Diseases Websites
Welcome to ResearchMatch!
ResearchMatch is a not-for-profit effort that brings together researchers and people who are willing to learn more about research studies in a secure and convenient manner.
Progeria Research Foundation | Home
The mission of The Progeria Research Foundation is to find treatments and the cure for Progeria and its aging related disorders.
CSL Behring: Global Life Saving Biotherapies, Plasma Protein Biotherapeutics
CSL Behring is committed to saving lives and improving the quality of life for people with rare and serious diseases worldwide.
Rare Disease Day ® 2014
The main objective of Rare Disease Day 2014 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
Oxalosis and Hyperoxaluria Foundation (OHF) - Support for Oxalosis, PH and related stone diseases
The mission of the OHF is to promote research to find a cure for Oxalosis, PH and related stone diseases and improve the care and treatment of those it affects.
Global Genes Project - Leading Rare and Genetic Disease Non-Profit Organization - Building awareness and communities to support and find treatments for Rare Diseases
Global Genes Project is the leading rare and genetic disease advocacy organization in the world. The non-profit organization promotes the needs of the rare and genetic disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon. Global Genes primary mission is rare disease awareness, research...
RD-CONNECT | An integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research
RD-Connect links up rare disease research internationally to create an integrated hub enabling researchers to share rare disease research results and omics data.
Siren Interactive | Rare Disease Experts
Siren Interactive is a rare disease marketing agency with a digital focus and unmatched expertise in understanding rare diseases, patients, and orphan drug development.
StudyPages by Yuzu Labs PBC
Participant Recruitment and Engagement Platform for Clinical Research
The Rare Disease Company – Genetic Testing for You and Your Patients | Centogene
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients lifes every day. Order your genetic test!