Rare Disease Websites
Progeria Research Foundation | Home
The mission of The Progeria Research Foundation is to find treatments and the cure for Progeria and its aging related disorders.
Genzyme Corporate Homepage
Genzyme has pioneered the development and delivery of transformative therapies for patients affected by rare and debilitating diseases for over 30 years.
Rare Disease Day ® 2014
The main objective of Rare Disease Day 2014 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing more than 600 rare diseases patient organisations in over 50 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
Welcome to NDI Foundation - NDI Foundation
We are continuing to seek volunteers for this study which is being conducted at these research centers:...
Rare Disease Report
Rare Disease Report is an independent voice for the rare disease community. We provide medical, business, regulatory, advocacy, and conference coverage related to orphan drugs and rare diseases. Our mission is to bring the rare disease community closer together so that patients will be diagnosed and treated more...
Pharmaceutical market access & Consulting into MENA | GENPHARM Services
Pharmaceutical market access, Business Development, distribution &Pharmaceutical consultancy in the Middle East & North Africa region for specialty
Little Miss Hannah - Fight against Neuronopathic Gaucher's Disease type 2/3 — Our Fight against Gaucher's Disease type 2 or 3
Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and...
Life Vessel sales, Life Force sales, buy a Life Vessel, buy a Life Force, purchase a Life Vessel, purchase a Life Force, price of Life Vessel, price of Life Force, how to buy a Life Vessel, how to buy Life Force
"Healing may not be so much about getting better, as about letting go of everything that isn't you--all of the expectations, all the beliefs--and becoming who you are." ~Rachel Noami Remen Denver is the proud home of the Life Vessel. Known as one of t ...
NetsOs - Deutsche Gesellschaft für Osteologie e.V.
Netzwerk seltene Osteopathien. Verbesserung der klinischen Versorgung, der Forschung und der Netzwerkbildung im Bereich seltener Knochenerkrankungen in Deutschland, Österreich und der Schweiz.